About Me

I am the proud mother of 6 children. 5 of our children have autism. We do not feel our world has ended, but just begun. We do not chelate, intervene biochemically, give shots of any kind, practice ABA, etc. We treat them as we treat any humanbeing. We treat them with kindness and respect and expect the same from them. They are exceptional children.

Blog Archive

Saturday, September 16, 2006

To Blog, or Not To Blog....

I have kept a journal, ever since I saw the tv movie "Go Ask Alice" in 1971 ( I believe). My sister gave me my first diary on Christmas Day. I diligently started it on New Year's Day. I slept with it under my pillow.
I wrote in my diary ( which became a journal when I entered college), every day for almost 35 years.
My diary/journal got me through puberty, lost loves (damn that Shawn Casey for not noticing me), anorexia, my first sexual experience, rape, wronged friendships, etc.
After I had our first-born, Caitlin, I decided to journal her growth. I new at birth she would require extra care. I wanted to document her screams, sleepless nights, etc.
I was so happy I did this after she was diagnosed. It has been my savior on nights I did not know if I was doing the correct thing with her. I documented all her GFCF, nutrients, enemas (which I still cry about), doctors appointments, etc.
We stopped all of these when Caitlin turned 4, and she dumped the concoction I gave her to drink, down the sink.... It was done for all of us.
As our family grew, so did my journals.
I joined a local Support Group for autism. Unfortunately, they did not want to hear my side of the story. I was negated and bullied for my anti-biomedical beliefs.
Funny thing, many of these parent's emailed me off-list. They too were disillusioned, but did not want to speak up for fear of being bullied.
I don't have a problem with bullies. I think bullies are cowards.
None of my children are bullied, or have become that....that is one of our greatest accomplishments in their lives.

Then one day, I went looking for a site on the computer who held our beliefs on what autism is and what autism can be.
I found a huge pot of gold at the end of my rainbow...I found Soapbox Mom's blog.
I commented on her blog, and she responded. Wow.......
She told me there were many out there like us. She gave me sites to go to, blogs to read, etc. I found a safe place for my children and my family to go to and not be BULLIED.

I then decided, I could also blog. I can write well, in my jaded mind.
I always wanted to write a book, I am just a bit too lazy.
I decided my blog would be about my family and my feelings about autism and all the crazy things people do to cure their children.
Yes, it makes me angry, but I am ALLOWED my feelings. I cry when I read about all the things people put their children through, for the sake of "curing" them. You "cure" meat, not children.
I get angry when I read how a mom is going to scope her NT child, because she has a stomach ache. I want to go and rescue that little girl. I want to tell the mother that PERFECT does not exist.
That is what I CAN and WILL write about on MY blog....
Don't like it, Don't read it......

2 comments:

Soapbox mom said...

"Don't like it, Don't read it......"

Amen.

Mom26children said...

Thanks Soapbox Mom,
I really feel that people read your blog to get angry at you. How silly, when all you have done is written how "you" feel.
Because you don't feel or do the things other parent's are doing, does not give people the right to comment on YOUR blog. That is what their silly little forums are for. For the parent's that intervene biomedically, dietarily (is that a new word?), HBOTily, intraveneously can go.
I always understood a forum to be a place you can discuss...these parent's are far too angry to discuss anything.