About Me

I am the proud mother of 6 children. 5 of our children have autism. We do not feel our world has ended, but just begun. We do not chelate, intervene biochemically, give shots of any kind, practice ABA, etc. We treat them as we treat any humanbeing. We treat them with kindness and respect and expect the same from them. They are exceptional children.

Monday, March 02, 2009

SO BOARD...OOPS !!!

I mean bored!
Autism forums, boards and "news" sites have become quite a joke
lately among the parent's of children and adults with Autism who are
truly looking for help.
I have been reading these sites for over 5 years now, and they are
still fighting about the same thing they fought about 5 years ago.
Luckily for the reader, some of the more prevalent writers have become better
spellers (my biggest pet peeve when someone is trying to be smarter than another
person).
I have read the same garbage written by the same people for years. They
have nothing new to say. These posters like to cut and paste from other forums
and act like they actually have a clue.
They call names, malign people, and actually...believe me this really happens...
start letter writing and petition signing campaigns.
PEOPLE....you are just pissing off the people you are intending to get to change their
minds.

On one board, there is a particular person who truly thinks they are smart. These
types are the scary ones. They read something somewhere...usually a site that promotes
propaganda and actually believe the crap that is written.
They take every twist and turn the propagandist makes and pushes it so far down in
their brain, it actually looks like the truth to them.
How sad they forget to think for themselves.

These places are like watching a soap opera you haven't seen in years...btw, I do
not watch soap operas (so don't go there with me). You happen to stop on the channel
and there are the same characters with the same problems..just more grey hair and they
have a couple of adult kids by now..having the same problems.
Do ya get where I am going here?

In 5 years, we will be reading the same thing on these boards.

Parents of Autistic children who practice the biomedical approach to Autism
will still be singing the praises of Jenny McCarthy and Dr. Andrew Wakefield.
Jenny and Andrew will be nicely retired after earning a butt-load of money
from these parent's.
The parent's who gave money to these retirees will be working to pay off the
large amount of debt they incurred while paying these "Autism prophets".
The good thing is though, Jenny's face will not have changed one bit...due to
being able to keep on affording the Botox she so greatly loves.

Oh, and Winnie...thanks for the chuckle today on the AW site. I have been
home all day with a sick child and needed a giggle.
"Verifying Facts"....tee hee !!!!
I hope if she is writing a book, she gets someone to spell check for her. ;)

4 comments:

Jeannie said...

Ya know, when my son was first diagnosed, I felt the need to explore every avenue. I contacted the Pfiefer institute (something about vitamins, kelation (sp?) and metals) and the esteemed Dr. Oosman (phonetically spelled b/c I can't remember how to spell it), who people from all over the country sought to get an appointment with and flocked to Naperville Illinois for a cure.

I gave up on this stuff pretty quickly. I just couldn't focus on one more "fix." And I'm so glad I did. I was so much happier focusing on the immediate needs of my child without a search for ways to "fix" him.

Now I can easily say this b/c my child's condition is pretty mild. And I'm not criticizing parents who believe that these things work for theirs.

I'm just grateful for the perspective I adopted. My life is so much more peaceful this way.

Anonymous said...

It's "parents of children", not "parent's of children". (for plural, I mean). I really apologize for bringing it up, it's an obsession of mine - and English is not even my first language, so I really have no excuse for barging in like this on your blog(insert blushing emoticon here)
Other than that, I hear you about the soap :)

Lillian

Mom26children said...

Hi Lillian,
I was waiting for someone to pick out my mistakes. Oh well, live and learn.
I wrote parent's like having ownership of the autistic children. My bad.
Barge away..I love it.
Jeanette

tiffrutherf said...

Hi, I think your right about the autistic community and us fighting among one another (sadly, I actually did that this week I'm so ashamed).

As for me I think each parent has the right to choose what treatment they wish use, if any..I just want the CHOICE to be there if they wish to take it. I have never read Jenny M's book and I must be honest I don't follow "Autism News". Until I hear the word "Cure" I'm not too interested. We opted to go the Bio-chemical rout, but this was after lots of testing for my son. He had very high lead leaves so we had to chelate and the Gf/Cf diet was a must....but that's my story, and I think every person has a right to HAVE a story as long as its successful in their eyes. So why are we fighting??

Some people just want hope, and sometimes that's all that gets them threw they day..the hope that maybe this will help their child. So we keep trying..may it be bio-chemical, home school, ABA or just letting nature take its course. I think when we drop to our knees at night; the prayer is somewhat the same; for your children to have the best life possible and be happy.

We all agree that each child is different, so until there is a cure, i guess each treatment will be different.

I TRULY applaud you for doing it YOUR way...And I agree with your post!!! lets give each other a hand up, instead of a put down!!

So here's to you Momto26children!! from one Mom to another, our paths may be different but our destinations are the same..Just wave to me across the road from time to time, will you? And in case no one has told you today, your doing a AWESOME JOB!!!!!