About Me

I am the proud mother of 6 children. 5 of our children have autism. We do not feel our world has ended, but just begun. We do not chelate, intervene biochemically, give shots of any kind, practice ABA, etc. We treat them as we treat any humanbeing. We treat them with kindness and respect and expect the same from them. They are exceptional children.

Monday, August 07, 2006

It baffles my mind when I read the emails from parent's of autistic children and what they will do to "cure" their children. How dare they have a child that is not typical. I have read where parent's are upset that they have to find ways to "improve" their children's lives. How sad their own lives must be.
We are the parent's of 5 autistic children. We were approached by a famous doctor to start intervention for our children to "recover" them. This would be of no cost to us, of course? Once we started talking with this organization, we realized the things they wanted done was not anything we would put our children through. They wanted to chelate them, change their diets, scope their intestines (after a 2 day fast), draw blood every week, give them vitamins and minerals, give them B12 shots, and so forth. Then the bottom line came up. It would cost us. They were going to try to charge Medicaid. Then and there I put a stop to all talks. I called the doctor and told them I want proof these methods work. Show me a "recovered" autistic child. They cannot do this. Know why? There are no "recovered" autistic children.

6 comments:

Soapbox mom said...

Wonderful blog! I agree with what you said wholeheartedly. Jeanette, you are NOT alone. Please go to the following site for many blogs with a similar mindset.
Your kids are very lucky to have you. I'd love to hear about them!

Check out this link. I think you will like it.
http://feeds.feedburner.com/autismhub

Soapbox mom said...
This comment has been removed by a blog administrator.
little bo peep said...

Yes, please tell us more about life at your house. We have one autistic son and he is the apple of our eye. Wouldn't change him for anything!

Do'C said...

Hi Mom26,

This is an intersting first post. How thoughtless of someone to suggest what they apparently did. I hope you'll keep writing - sounds like you have your head on straight.

Marius Filip said...

I suggest you go to autism.ro and express there your opinion that "there are no recovered autistic children" (it is a Romanian forum, yet lots of people there know English)

Go to autism.ro and talk to Mr. Damian (he signs under the nickname Shakalu - it means The Jakal).

He is the one who brought ABA to Romania and his child was the first one recovered from autism in our land.

His son jumped from an IQ of 35 to being a kid with normal IQ, going to normal school, learning English, playing on computer, having friends, and doing what other normal kids do - only due to the blood and sweat of 3 years of ABA training.

The "love, understanding and respect" empty words did not help the child of Mr. Damian. It was the hard work of his parents and therapists that did. For him, "love, understanding and respect" meant intensive ABA treatment - and not "autism is not a disaster" fluff.

Try to tell Mr. Damian that "there are no recovered kids". If your children were mild enough to be helped by a less intense form of intervention, it doesn't mean it applies to everyone. I think quite the contrary.

I find your blog profoundly misleading and even dangerous.

It is misleading because you give the impression right into the head of the blog that you did not do any intervention on your children ("We do not chelate, intervene biochemically, give shots of any kind, practice ABA, etc"), when, in fact, you did (play therapy, speech therapy).

Secondly, you minimize the seriousness of this disorder and imply that autism is not a big deal, thus giving the impression that, after all, what's the fuss folks, we all have strengths and weaknesses, don't we?

Meanwhile, I guess lots of autistic children are left prey to a future of extreme sensory sensitivities, self-injurious behaviors, social isolation or mental retardation because they may have parents who believe that autism deserves a "positive view" and it's not a serious disorder that we have to fight at our highest possible capacity.

Anonymous said...

I think that's crappy you don't want to help your kids. You'd rather hold them back from being bright smart beautiful individuals. Pretty sick. Makes me wonder if you're sadistic or if they really have nay problems