About Me
- Mom26children
- I am the proud mother of 6 children. 5 of our children have autism. We do not feel our world has ended, but just begun. We do not chelate, intervene biochemically, give shots of any kind, practice ABA, etc. We treat them as we treat any humanbeing. We treat them with kindness and respect and expect the same from them. They are exceptional children.
Saturday, July 18, 2009
ROLLER COASTER RIDE....
myself...I don't wallow in the self-pity of having children with Autism.
Sad for the child about who the piece was written for.
A child who's mother views as "dead"..because, for goodness sakes,
she has Autism. The child she used to have (before the autism) is dead...
Confusing...I know !!!!
As you read on in the piece, you see this child seems to have come a very
long way. She is now considered "recovered" by the mother. But, I guess
that is just not good enough either. This beautiful little girl happens to have
been born 7 days after my youngest son.
I am amazed how 2 women..mother's of children who are the same age...can feel
so differently about their children.
In our home, we live with 2 severely disabled autistic individuals. The bookends
of our children...the youngest and the oldest..
Kiernan 8 is non-verbal and a ball of energy. He is what keeps us on our toes. He
is beauty and grace. He is our last child, but he has always fit into our very
unique family. He receives therapies and has attendant care, because he requires
a lot of energy to take care of...but, he is worth every minute.
Caitlin, 18, is verbal by choice. She will answer your questions, but they better be
worth her time to answer. She also requires attendant care, because mentally,
she is like an 8 year old. She attends regular high school with a 3.7 grade point
average. She is complex and unique.
Erin and Patrick both have PDD-NOS. Although you cannot tell them apart from
their peers, they have sensory issues. She wears her Ipod and headphones when she
needs to shut people and noises out. We approach their issues individually. Erin
needs a drawing pad and something soft to rub on where ever we go. Patrick needs
a video game or a ball to squeeze. These items keep them focused and able to stay
on task.
Deirdre has Asperger's. She is inquisitive and wants to learn new things. She reads
all the time. Deirdre also listens to her headphones when she is annoyed or irritated.
Deirdre loves older kids, she can keep up with adult conversations and is up on current
events. She is as close to brilliant as their is. In fact...She is the smartest person I
know, and I am the dumbest person she knows ( in her mind, anyway).
Meaghan, our NT child is just that NT...and with that comes all of the angst and heart-break
that a normal 6th grade girl should know. The right hair, clothes, Ipod, boyfriends,
swimsuit, bra, etc.....whew !!!!
I know that God put me on this Earth to be these children's mother. He knew that
they would be loved and cared for. He knew that I would never judge them or their
behaviors. He knew that I would accept them and with this, their Autism.
My children have come such a long way. They have surpassed what others told us they
could never do. They have continued to amaze their instructors and their therapists.
They will continue to do so as they get older and mature. We have seen this in our
older children and will see it in our younger children also.
Autism did not ruin our family. Autism did not take my children from us. They are
right here in front of me. They are beautiful and funny. When they enter a room,
I feel my face light up and my heart fill with so much love. They are meant to be here
and they are meant to be mine.
These children will NEVER feel that they are not meant to be.
We will continue to raise them and adore them. We will continue to enjoy this roller
coaster of a ride that was chosen for our family...and I will continue to thank God
every day for letting me be these children's mother.
BTW..today is my husband's 44th birthday. Me and the kids...yes, all 6 of them,
will be heading out to get the cake and ice cream for tonight's festivities. We will
prepare his favorite dinner and enjoy being around this amazing man...a man who
has never questioned why he is the father of these children, but a man who
works 2 jobs to make sure they are taken care of. A man, who at this very minute,
is at the ball field running a clinic for kids who need a bit of help with baseball, so
they can catch up with their peers (free of charge, of course)....selfless, loving and
strong...Happy Birthday Patrick !!!!
Tuesday, July 14, 2009
A WORK OF ART...
Saturday, July 04, 2009
MY INDEPENDENCE DAY....
We like to entertain..okay...I love to entertain..it is the caterer in me.
We had friends over..a single mother and her two young boys, aged 7 and 11.
The 11 year old is quite active and requires some prompts to settle down or stay
on task. They have been in our home before, but I never thought to ask the mother
what "diagnosis" her child had..because, I can pick out Autism anywhere...
I asked the mom..."So, ADHD..."?
She said, "No"..
I went further..
"Aspergers"?
Nope...
Finally, this very bright mother said....He's just Johnny !!!! (yes, I changed the name)
Nuff said...
Why the hell have we parents fought for years for a label...when all we could have done
is accept our child for being themselves?....I so get it !!!
Why are we trying so very hard for our children to be accepted into a community that
would probably not accept them no matter what...because perfection is what we are
used to wanting...
When I watch Oprah or Larry King Live, and see Jenny McCarthy or the other biomedical
mothers...with the scowls on their faces, because they are so frickin mad at what life has
given them...
Then, I look over and see the gifts God has given me....I am so thankful I am pass the anger
that autism tried to give me.
So,yes,
My kids have a diagnosis of Autism..but,
from now on,
They are Caitlin, Deirdre, Erin, Meaghan, Patrick and Kiernan...
They are who they are...they will owe no one an explanation..
they will owe no one a reason for why they are the way they are...
This has become my Independence Day....
Wednesday, July 01, 2009
Eric London Resigns from Autism Speaks.....
My husband, my mother, Caitlin, Deirdre, Erin, baby Meaghan and myself traveled
to New Orleans, LA to attend a NAAR gala.
I had called Karen, on the phone, prior to the engagement to tell her how excited I
was that NAAR was started and to tell her a bit about my family.
You see, we were in the process of having Erin diagnosed at the age of 18 months.
We had 2 kids with Autism, which was unheard of at the time.
The NAAR benefit was held in New Orleans...one of my favorite cities. The gala was
held at Ann Rice's mansion. John Goodman was to MC...I love him from Roseanne.
Delta Burke, from my favorite show, Designing Women, was to attend also. In attendance,
was also to be Joe Montegna (who has a child with Autism)....
We arrived at this black tie affair...my husband in his rented tux..and me, in an evening
gown and a borrowed mink coat. We felt like royalty.
The evening started and we were told that John Goodman, Delta Burke and Joe Montegna
were all stuck on location somewhere, and would not be attending.
Dr. London took over as MC....and you know what..?? We did not miss Mr. Goodman AT ALL!!
Dr. London grabbed the microphone and began to tell a story. The story was about
their child who was diagnosed with autism. Tears began to fill his eyes...and the whole
audience listened and cried with Dr. London. He told about his passion in finding ways
to help his child. He told about his feelings and shared his soul....that was incredibly
brave of him....
My husband looked at me...because I tend to well up when I see people cry (especially
men) and asked if I was okay...
I was !!!
I was, because I was in the presence of a man who was not going to give up finding ways
to help his son and not give in to the pressures of those who are wrong.
This week, it was announced that Dr. London was resigning from Autism Speaks for
reasons that are his....not the cronies at Autism Speaks (yes, poor little Katie Wright
is bitching and moaning about this), or the martyrs who feel it is okay to demean and
belittle other parents over at the AS forum.....
The comments on the AS forum are as low as you can go....they do not know Dr. London.
They judge him because he does not believe the way they do...WAY BEYOND PATHETIC !!
Dr. London owes no explanation to you...but, I will say...he has done it with dignity...
something I think the people over at AS need to acquire.
Dr. London...I wish you and your lovely family all of the best. I hope you can continue your
work in Autism with your new endeavor....
My family and myself thank you for that !!!
Monday, June 29, 2009
WHAT THE FUTURE HOLDS.....
We all have a vision of our child's future. While our children are growing inside our wombs, we only hope that their futures are going to be bright.
This dream should not die just because your child received a diagnosis of Autism. What should happen is that we, as parents, begin to map their journey starting at a very young age.
Caitlin will be a Senior in high school this year. She will graduate with her class, and possibly continue her education with job training. Caitlin wants to work in an art gallery or a library. There is no reason she cannot....except...the school does not have a clue as to begin her journey to her goal.
As I read AoA today....yes, I read it every day...
Mr. Kirby writes about the "devastating" number of children with Autism in California,
who will be adults with Autism and how this will affect the tax payers.
We could be so ahead of the game if not for wasting the last 10 years on focusing on
"curing" our children through the misguided advice from politicians and journalists.
We could have used all of the resources if we, as parent's, had not listened to the
snake-oil salesmen and women who promised us "neuro-typical" children if we
chelate, B12, Hbot, supplement, and give a diet rich in GF/CF foods.
Right when I thought parent's were coming to their senses...in walks Jenny McCarthy...
back to square one, thanks to her.
One of the comments on AoA was " Everyone in government and medicine should be getting behind us parents working to recover our children.
Thanks to biomedical treatment, many who would grow into governmental depends will be productive, contributing members of society instead."
My answer to the above opine is...
Everyone in government and medicine should be behind EVERY parent with a child or children with Autism. Thanks to the amazing efforts of educators and therapists who are teaching our children coping skills (instead of snake oil promises), our children will grow up and be productive, contributing members of society....
There are many parents out here in Autism Land that have seen our seriously disabled autistic children grow and blossom into productive children. All without having to buy into the hype that is being sold as a "cure"...
So, what does the future hold for any of our children....only the future will tell...for any child. But, why do we feel that our children will fare any less, because they have autism. I expect nothing less from my children with Autism, than I expect from our Neuro-typical daughter. The skies the limit for all of them....
Saturday, June 27, 2009
SAME OL'...SAME OL'...
computer in 1997. Caitlin was 6 years old.
So, for 12 years, I have sought out information, from other parents
of children with Autism. I was seeking people who had the same experiences
we had, more experience than we had and different experiences we had
in raising our children with Autism.
After a few years of being involved in the "witty" banter (and let's face it...if
you do not agree with the biomedical community, there is nothing witty about it)..
I decided a year ago, to take a break.
The last 2 weeks, I have decided to revisit the two forums that I frequented...
AutismSpeaks and AutismWeb....
To my surprise....well, not really....I see the same old ranters ranting the same old
rantings...
The same unhappy and unpleasant people who want those around them to be as
miserable as they are. The same name-calling and hatefulness that sent me away
from these forums still exists.
Returning to the forums is very much like returning to watch a soap opera you used
to watch in college and being able to catch up in minutes.
Mrs. Davis is spewing the same lies about the same people and unable to back up her
inaccuracies....
while her cronies keep egging her on...
I truly believe they set her up to look so ignorant (but, that is just my opinion).
Yet, at the same time..not one of these people are helping any parent or child with
autism!!!!
These people with autistic children swore 4 to 5 years ago that they are going to
cure their children by chelating them, changing their diets, supplementing them
with untested drugs, enclosing them in Hbot machines, injecting them with B12 and
lupron shots, slapping nicotine patches on their very small bodies, etc....
Here we are 4 to 5 years later and they still have children with Autism...only older.
Instead of mellowing and finding peace with their children..they are still very angry
and in turn...take the anger out on other parents.
They have continued to try any new cure that comes along...including the OSR crap
being sold by the heads of biomedical.
They have continued to take digs at other parents who go onto these forums to help
parent's of newly diagnosed children...just like they have.
They take every piece of propaganda they can get their hands on and twist and turn
the information to fit their purposes.
So, for this very reason...I will remain off of the forums that are so negatively portraying
autism.
BUT....
I will not stop at trying to help those who are open to a clearer, more logical approach.
I have found many parent's, such as myself and my family, who are willing to
stop this insanity of Jenny McCarthy and Age of Autism....we will be heard and we
welcome to hear from you....
We will not call you names...we will not talk about you behind your backs on "private
forums". We will not demean you for not thinking the way you do. We will not stalk or
torment you like others feel the need to.
We also will not sell you false hopes....just truthful and honest advice that we has been
working for our children with Autism for the past decade and more....
I wish those on the forums luck...I wish them peace....
Mostly...I wish their children happiness in the worlds that are so full
of hate and bitterness....
Wednesday, June 24, 2009
LAYING IT OUT....
This "anonymous" caller told me..
1. I had no idea what autism was.
2. I did not have autistic children to begin with.
3. I am doing a disservice to people with autistic children who are trying to
help their children...
Let me lay out my feelings...
Let me get this out on the table...
I do not believe in this autism hype of recovery or curedom...
I do not believe the GF/CF diet will cure your child with Autism...yes,
the diet will alleviete symptoms of distress in your child with bowel problems
but....bowel problems are not autism...
I do not believe a B12 lollipop is worth crap.
I do not believe a B12 shot is worth crap.
I think you are doing more harm to your child if you do chelation.
I think you are doing more harm to your child if you do Hbot.
I believe Jenny McCarthy is a joke...and I do not mean she is funny !!!!
I believe a whole lot of physicians are making a whole lot of money off of a
whole lot of parents with children with Autism.
I feel badly for parents who log on to the computer looking for answers find
scare tactics and propaganda.
I feel badly for the parents who buy into the hype that they can cure their child.
What I do know...
I know that kids with Autism grow up and get better with traditional therapies.
I know through inclusion...kids with autism will be educated better than those
without inclusion.
I know that parenting a child with autism is hard...but not impossible.
I do feel sorry for the parents of children who have autism and truly believe their
has been a "conspiracy" from the government. Really gifted journalists have started
this theory and have had a really hard time holding up their end of the conspiracy.
The saddest part is, these really gifted journalists have sold their bill of goods to some
parents who sold everything they own to buy into their crap.
And, in the end....these people have made a butt-load of money and the parents
have lost the same amount.
I have said my peace for the time being, but believe me, I am not done....
I am ticked off.....
I am sick of the media spewing this propaganda crap and the sane one's of us
have to sit back and listen....
Our time has come....
As Jenny McCarthy said on the View a couple of years ago.....
"I am going to use my big mouth to educate the people about Autism".....
ON HIS WAY...
Lately, Kiernan has decided it is time for him to communicate with
his voice, not just his Vanguard system or spelling out the words..
I knew this day would come. We have been raising a child with autism
for over 18 years. Believe it or not....Autistic children do get better without
the need of expensive biomedical interventions.
How do I know ????
Because, we have 5 children with Autism.
3 of them are non-distinguishable from their peers....but, they are autistic.
They went from severe autism, and all that entails (poop-smearing, screaming,
running away, lack of sleeping, non-verbal)...to functional, productive people.
All of this while ingesting a gluten-filled, casein-filled diet.
These children have remained in speech and occupational therapies. They did not
participate in the dangerous practices of Hbot and chelation....
Caitlin remained non-verbal....between the ages of 8 and 9, she decided it was time
for her to talk. She has remained verbal and can answer most of your questions about
her autism. She will tell you what bothers her and why she does the things she does...
like cover her ears and humming. Her mind is quite fascinating....as is she.
So, now that Kiernan is discovering his voice....I want to share with the parents of
children with Autism who are told without spending their life-savings on unproven
treatments that....YES....your child will mature and get better.
Unlike the sites that promote the despair of Autism and all the propaganda that
goes along with this despair, I want to share the joy of my children and all the
joy they have brought us.
So...I believe Kiernan is well on his way to talking to us....
It may be soon, it may not...but....
he is on his way..
Tuesday, June 16, 2009
Saturday, June 13, 2009
OPENING A BLIND EYE....
Well, specifically to Autistic Adults....
I have read, continually, that a certain group (and we all know who
this group is...so I will not dignify them with a link) want so be shown
the Autistic Adults....
I believe the question is...
"If Autism is not new, then where are all of the Adults with Autism"???
OPEN YOUR EYES.....they are right in front of you....
They are at the grocery store..
They are at the Walmart and the Target....
They are at the malls....
They are living under my roof....and soon to be living under yours....
They are working in factories, computer companies, shopping malls, retail stores,
and local businesses.
They are living on their own..or in group homes...or some, remain in their homes with
their parents.
While shopping with my 18-year-old daughter, Caitlin, yesterday....a woman
gave Cady a sneer as she walked by humming and buzzing.
I approached the woman and sneered back at her...okay, the Texas Mama in
me came out....it was a moment.
She asked me, "Do you have a problem"...??
I answered, "As a matter of fact, I do"!! "What would possess you to look at my
beautiful daughter with such disgust"?
This woman answered, "In my day, she would have been put away in one of them
hospitals".....
I told this woman, "Thank God we have come so far from "your day"!!
I then explained that Caitlin had Autism...she then told me how you didn't see
those folks when they were growing up...."they either lived with their folks or
were put away in one of them places".....
If you type in the words "State institutions" or "State Hospitals" and read about
these places where they put the "mentally disabled" or "Mentally Fragile" patients...
you would see where they started out to be nice replacements for home living, but
soon became so over-crowded with the "mentally unstable"...they became "horror
houses" for the disabled.
Wall-to-wall children and young adults....most labeled "mentally retarded", because
the diagnosis of Autism was not yet discovered. I truly believe these non-verbal, non-toilet
trained, rocking and head-banging children would have been labeled autistic now.. They
would have the wonders of an education and therapies that were non-existent then.
They would now be able to be functioning adults, instead of the majority of them
dying young in a place where no one could see them....hidden behind large brick buildings
with very high stone gates.....
Every time I go out, I see these amazing humans and thank God were are walking and
working amongst them...This gives me great hope for the future of our children with Autism....
because, believe me....they will become adults, just like the Autistic children that have come
before them. Luckily for them, they are no longer hidden by blind eyes!!!!
Tuesday, April 21, 2009
WHAT AUTISM ISN'T....
(http://daisymayfattypants.blogspot.com/2009/04/what-is-autism-well-it-aint-this.html)In case you want to read it...What is Autism?
I was so incensed by the article that I had to write the author.
This is my first email I sent...
What Is Autism? Autism is a neurological disorder. It is not GI issues !!! It is not the "unethical and untested" treatments given by doctors at The Thoughtful House. Autism is not heavy metal poisoning or too much toxicity in the body. What Is Autism? Autism, in my house is age 18, severe autism, junior at regular high school with an aide...honor roll. Age 14, Aspergers..regular high school honor roll. Age 12, PDD-NOS..regular middle school....honor roll. Age 9, PDD-NOS..regular elementary school...honor roll. Age 8, Severe Autism, regular elementary school..lifeskills program with inclusion. It is not sedation with a colonscopy. It is not the elemental diet fasting. It is not Hbot chambers. It is not chelation. It is hard-working therapists who work hard to help our children be able to live in a society that wants to "cure" them so desperately. My children are not broken, they need to adapt to a society that so readily wants to make them better. They are pretty amazing to me already. If you really want to see autism, give me a holler... I will introduce you to some pretty amazing people...
This was my response from the author...
From: Darline Turner-Lee To: Mom26children@aol.com Sent: Mon, 20 Apr 2009 2:39 pm Subject: RE: What is Autism Dear Ms. O'Donnell, As the writer of the "What is Autism" article, I am responding to your editorial comment. First off, Autism is classified as a neurological disorder, but that description is believed by many clinicians who work with children with autism to be incomplete. There is overwhelming evidence that many of the neurological manifestations of autism are the result of abnormalities in affected children's gastrointestinal tracts and immune systems. Many scientists and clinicians, those of Thoughtful House, The CARE Clinics and others believe that doctors have to look at and treat the other systems in order to effectively manage autism. As a mother of 4 children with Autism Spectrum Disorder, I am sure that you have seen a wide range of symptoms and had to try a wide range of treatments in order to help your children to be able to function and mainstream to the high degree that they are currently. Thankfully for you, you found conventional treatment plans and therapist that have worked for your situation. Unfortunately, that has not been the case in many other situations. For many other families, when conventional treatments and therapists gave them no hope at all, using alternative treatments such as dietary modification, chelation therapy, Hyperbaric Oxygen, supplements and others has meant the difference between their children being able to focus and mainstream into public schools and being unable to function, interact with others or to participate in society. It is not anyone's right (yours included) to declare that a treatment is wrong or ineffective if they have not used it, it was not effective in their situation or if other people are using it-whether successful or not. Parents of autistic children, like parents of children with any type of medical disorder, are simply trying to get help for their children. When one treatment or therapist doesn't work for them, they must move on to something else. Every parent makes difficult decisions for their children. These are choices that many parents made and while you and others may not believe in the treatments offered by these facilities, that does not mean that they are not valid, are not effective or that they cannot be discussed. The doctors at both Thoughtful House and The CARE Clinics are not practicing outside the scope of skill, they are not doing anything unethical nor are they harming the children that they treat. They provide ANOTHER MEANS by which children on the Autism Spectrum Disorder can manage their symptoms and be able to focus, control their movements, learn and become integrated into our society. I found that to be worthy of reporting and so I did. What you don't know and what will be presented in Part II of this series is that the aforementioned "alternative" therapies in conjunction with therapies such as Applied Behavioral Therapy and DIR Floor Model Therapies are giving children a chance at functional independence. So no, The work of dedicated therapists is not discounted. They will be presented. Autism is a multifactorial disorder and many therapies have to be integrated for treatment to be effective. We are all individuals and what will work in one person is not guaranteed to work in the next. If we become so narrowminded as to believe only what we can see and only what resonates with our belief systems we are going to miss out on a bounty of good therapies and I don't want that to happen. Thank you for your response. Darline Turner-Lee Physician Assistant, ACSM Clinical Exercise Specialist, Health Care Writer Next Step Fitness, Inc and Bedrest Comfort & Care 6705 Hwy. 290 West, Ste 502 #283, Austin, TX 78735 www.nextstepfitness.com www.mamasonbedrest.com darline@nextstepfitness.com darline@mamasonbedrest.com 512-288-0827
My response back to her...
Thanks for your reply. I must tell you, I have 5 autistic children, not 4. Your article was titled "What Is Autism"? You did not define it. You put what The Thoughtful House decided it is. Autism is not defined as gastrointestinal. No where in the DSM-IV is gastrointestinal listed. Autism is not toxic overload. That is what The Thoughtful House is defining it as. I found it very irresponsible reporting and yes, that is my opinion. 2 of my children are severely affected by autism. My oldest, 18 years old... and my youngest, 8 years old. My oldest received all vaccinations...my youngest received NONE... My 14 year old has Aspergers. My 12 year old and my 9 year old were both diagnosed with severe autism and now are PDD-NOS...both fully inclusioned in regular classrooms in regular schools. Why is this not being reported? They did not receive any chelation, any biomedical interventions, any Hbot any B12 shots, and any ABA or RDI. They have not been physically invaded through colonoscopies or lumbar punctures. What they did receive was OT, Speech, Play and Physical Therapies with a stress on Sensory Integration. Why is this not being reported? Why, because it is not sensationalistic enough, that is why. If I sound angry, I am not...I am just irritated with the media's need to represent Autism in a one deminsional way..the biomedical Jenny McCarthy-Thoughtful House way. That is not good journalism, but makes a good story, right? There is a new program starting at the University of Texas called UTAP- University of Texas Autism Program. They implement Sensory Integration Therapies and have found great success. I hope to heck they will be included in future media reports..you know, fair and balanced. Unless you have a child on the spectrum, you have know idea what some parent's will do to cure their children. Places like the Thoughtful House know this. They happily take the money these parent's are willing to hand out for false promises. I am a mother living in Austin and believe me, your magazine does not represent me. Jeanette O'Donnell
Friday, April 10, 2009
PRESENTING AUTISM POSITIVELY...
I am on a mission to present Autism with a positive approach. No more sad, impossible stories about autism. No more watching children have meltdowns on television for me. That is all that television and newpapers want to show.
Nope, I am on a mission to show a positive side to autism....I know, I know...Autism has its downside....all life does. It is called life.
No one, not even the most "normal" person has it easy. We all have to get along with people who do, or do not, want to get along with us.
I ran into an old friend from school at lunch today. I sat and talked with her and her mother for over an hour (I did not intend to , but I got to rambling)...I noticed a mother walk into the restaurant with her little girl (who has Down's Syndrome).
When they got up to leave, they walked by our table. I said, "What a beautiful child". Her mother looked into my eyes and smiled.
I hope people do not get the impression that I say these things to get a pat on the back...
I say these things because I want people to be aware of their surroundings and that their are differently-abled people everywhere.
Their parent's need to know that we care and we are there to help....
My friend Cynthia said, "Wow, that was amazing how the Mother connected to you"...I told her I have to talk to everyone, but especially parent's with children with disabilities. They need to know that they are not alone and that people see the beauty in their children.
I left there and went to my grocery store. As I was leaving, I heard buzzing..there was my other new friend Andrew (whom I met last week)...I said, "Hi Andrew"...He said, "Hi Jeanette"...my day was made..he remembered me.
If media will not portray our children with all of their beauty and everything that goes with it...not just the gloom and doom...then it is my job to do so.
Get ready America...we are coming...we will be stronger than any Warrior Mom...we have been around longer and we know the drill. We have age and wisdom on our side...we have withstood the good and the bad...we have met challenges and won. We will win the battle of the media also.
Does anyone know Oprah's direct phone number?
Monday, April 06, 2009
AUTISM, LIES and MONEY...
(and a few times after that..just to make sure I was hearing them correctly)...I have come to
the conclusion of the reason for their being on television...
MONEY, MONEY, MONEY, MONEY....
If you go to the website, mentioned on the show (and no, I will not mention it here)..you get
directed to a package sold by the good Dr. Kartzinel..for the incredibly low price of $219.80 +
shipping and handling (of course)...
All products followed by this disclaimer..
These statements have not been evaluated by the Food and Drug Administration. This product is not intended to diagnose, treat, cure or prevent any disease.
As if I would be surprised the FDA would approve anything they sold.
My problem is this...
Jenny McCarthy and Dr. Kartzinel have hit every talk show to #1..sell their book
and now #2..to sell their "supplements"...
Jenny McCarthy has stated her son is 100% recovered...100% cured...
BULLSHIT !!!!
JennyMcCarthy's son has minimal eye contact. He repeats phrases. He walks on
his tippie-toes. He attends a non-mainstream school, in his home. According to
Jenny, he is still receiving chelation (why, if he is cured?).
Jenny McCarthy has a beautiful son. That is not to be diminished.
Jenny McCarthy has a beautiful son with Autism, but to say that would stop the
sale of a lot of books and television appearances.
Our daughter Erin, 12 and our son Patrick, 9 were both diagnosed with severe autism
before their 2nd birthday.
Now, they are both PDD-NOS..they are non-distinguishable from their peers, in regular
classrooms, with neurotypical peers. They play amongst them and learn amongst them..
but, they are still Autistic.
When self-promoters like Jenny McCarthy sell the promise of cures and recovery, they
are not only lying to themselves, but to the many parents who are buying (and I mean
buying) into their bull...
I have been through all that is to be offered by the best and the worst of Autism...
we are now viewing the worst. I pray that I will not have to view her for much longer.
Saturday, April 04, 2009
WHERE ARE ALL THE ADULTS WITH AUTISM?
Mr. Handley, if you would like to take some time, I would love to introduce you to some adults with Autism...
In 1971, I had my first job...I was hired to babysit a family with a 3 year old boy and a 7 year old girl. The 3 year old boy had severe autism. He rocked, he flapped and he was non-verbal. He would now be 41 years old.
In 1982, I worked in a residential treatment center. The dorms I worked on had teenage boys and girls, initially diagnosed with Mental Retardation and then later, the Autism diagnosis was added.
These teenagers would now be in their late 30's and early 40's.
When the residential treatment center closed, they were sent home to find other facilities or in group homes....
In my neighborhood alone, there are 4 group homes that house 7 autistic adults in each home..that is 28 adults with Autism in my neighborhood alone...not including my child who is now an adult with Autism.
Mr. Handley, you singlehandedly have discarded a very large community of people living and working in our community. I believe you don't see it because you don't want to.
If you admit there are actually adults out in the world with autism, your little conspiracy will be shot down. All of the propaganda you spew at your sites will be discredited.
http://www.ageofautism.com/2009/04/from-cnn-live.html#comments
A mother writes on AgeOfAutism...
Mr. Handley discredits families of adult children with autism! He stated tonight on the show that there are no adults with autism! Shame of you for spreading your lack of knowledge. My son is 26 years old and has a diagnosis of autism. And shame on you for ignoring the years of hell our family and others like us has endured. When he was diagnosed 22 years ago, the criteria was so narrow that only the most severe could fit that label. Although my son was severe, they would not label his as having autism, but only "characteristics". Many children had autism back then, but were labeled MR! Go to the instituions and you will see the truly autistic adults that were mislabeled MR and mentally ill.22 years ago, I started reading about the MMR link; then the mercury link; now the huge vaccination link since you can no longer blame the MMR. Well, when my son was vaccinated beginning in 1983, there were less than 10 vaccines in the schedule. And guess what??? He is still autistic as are all of his former (now adult) classmates!
This was a response from a parent who is trying to discredit the mother who wrote the above letter to AoA...Nice huh?
Also, to Fonda Watson: If you are indeed a parent to a child 26 years old, I can relate as my child was born before the epidemic numbers, but right when the increase in thimerosal took place and the numbers did start to increase (1993).
How though, did you 22 years ago (1987) start "reading about the MMR link; then the mercury link; now the huge vaccination link since you can no longer blame the MMR." I'm sorry but that is just not accurate. You could not have investigated as no one knew that vaccines or environmental factors (mercury) were the cause of autism in 1987.
Ms. Conrick, if you are indeed a parent of a child with autism, how come it is so easy for
you to discredit a mother who has far more experience than you in living with an autistic
child?
This is the reason my blood is boiling right now....
I am amazed by the hatefulness that is spewed to the parent's who have lived
with a child with autism for over 20 years.
We have so much to learn from these mother's, but instead,
the mother's of younger children with autism want to call them liars.
The comment looks very similar to an Anonymous comment left on my blog
just yesterday...https://www.blogger.com/comment.g?blogID=32355297&postID=1998993530597266901
If you do work hard to help them, than that is admirable. If they are, in fact, doing so well in school, then I'm really happy to hear it. I do not for any child to struggle with Autism, regardless of whether or not I agree with their parents methods.
Of course, people who comment anonymously are really not to sure of their own
convictions, are they?
My hope is, since Mr. Handley so callously made this comment on television, that
every parent of an adult child with autism..or an adult with autism..comes forward and
lets him know they are here, they have been here, and they are tired of being ignored.
I will gladly represent those whose voices you are trying to silence...
I recently had a conversation with a 23-year-old male with autism. I asked him
what he would like to do with his life...he has one simple request...
"He wants more services for adults with Autism".."he wants to take college courses,
get a better job than cleaning tables at a local restaurant, and he wants speech therapy
past the age of 22 years old...."
I do not think that is too much to ask....
So, instead of saying the adults with autism do not exist...why don't we acknowledge they
do exist and make their lives accountable?
Thursday, April 02, 2009
AUTISM AWARENESS DAY...
Well, I personally have been aware of Autism for over 30 years. Starting at the tender
age of 10 years old, I babysat a 2 year old with Autism. That would make the young man
41 years old.
I worked at a residential treatment center from 1982 to 1985. I worked on a dorm with
4 15-year old girls with Autism. They would be 42 right now.
Then, in 1991, I gave birth to the first of our 6 children, 5 whom have autism....so
Aware we are.
So, on this Autism Awareness Day, I will not watch the news. I will not subject myself
to the torments of hearing how Jenny McCarthy is promising people that she can cure
or recover their children. I will not listen to Dr. Kartzinel tell people how his son is broken
and how autism steals the souls from our children....what a putz!!
I would love for Jenny to tell the truth on how her son is not attending regular school,
but a school built for him in their home...with him being the only child.
I would love to hear Jenny explain how she spews the harm of toxins, yet boasts about
the greatness of botox.
I would love for Dr. Kartzinel to explain that he adopted his child from a drug-addicted
mother...the little boy was unfortunately doomed to have neurological problems way before
he received the MMR shot.
I saw an ad on CNN for Larry King...it stated "THE TRUTH ABOUT AUTISM" with
Jenny McCarthy and Jim Carrey....
Neither of them know the truth about autism.
Autism is a neurological disorder. Autism is repetitive behaviors, lack of socialization and lack of verbal skills. Autism is the need to have constant stimulation around them. To make their surroundings comfortable for the noises or conditions around them that bother them, such as rocking, stimming or humming.
Autism is not the gut....Autism is not poop-smearing
(that is just a lovely side-effect due to the constant need of stimulation)...give your kid
some shaving cream instead to smear.
I would love to hear about Autistic children and adults who are thriving and improving
every day without the crap being talked about in Jenny McCarthy's book.
I feel really, truly sorry for the parent of a newly diagnosed child who has to rely on a
bleached-blonde, botox-filled, silicone-altered, D-list actress who is doing more harm
for the world of Autism than she could ever imagine.
I feel horrible for her son, who one day will read her books, and read the filth she
writes about not only his father, but other mothers who do not choose her approach.
Put Jenny McCarthy up against one of us mother's who have been in the world of autism
2 times longer than herself and she will not stand a chance...c'mon, we are ready for
a debate. Not a yelling match, but a debate. Not a name-calling festival, but a debate.
We won't be holding our breath...!!!
Saturday, March 28, 2009
JENNY McWHO ????
Jenny McWho?
Jenny McCarthy has done more harm for children with Autism than any
other person in the history of Autism. Through promoting that she has cured...
I mean, recovered....I mean..hell, she can't even get the story straight.
Anyway, when I bring up the fact that I need to prepare my children for their future...
their future education, their future living arrangements, their future jobs, this is what
alot of people say..."Jenny McCarthy says your children can be cured...why don't you
cure your children, then you wouldn't need the services?"
Through Jenny McCarthy campaigning that autism can be cured..why would we need to prepare for our childrens future if they can be cured?...
I am working very hard to make sure my children with autism have a fighting chance
to have a decent life after public school. The school system has been a wonderful
place for my kids. They have been treated with respect and dignity. They have
inclusioned my children and educated them better than I would ever have imagined.
I want my children to be able to attend the college of their choice. I want them
to be able to work wherever they want.
Lately, I have had contact with several moms who have older Autistic children. These
true Mother Warriors, the one's who are fighting for better services for their adults with
autism, all say the same thing to me...
"Jenny McCarthy pisses me off"!!!!
Guess what? She pisses a whole bunch of people off.
I stopped liking her way before the Autism thing...I stopped liking her when she compared
herself to Lucille Ball...as if !!!!
Even worse, now she has written a new book with the same doctor who said my
children's souls were stolen by Autism...he obviously has not met my children!!!
Get ready for Oprah and Larry King to pounce on this one....
I wish to one day turn on the television...I want to see a group of women who have
seen autism for over 20 years. The mom's and dad's who have loved and cared for
a child with autism and now are caring for an adult with autism. I want to hear
their stories of encouragement. I hear these stories every day...why can't the rest
of the world be blessed with the beauty I get to see and not the "pity party" that is
so popular in the world of Autism?
I want to see adults with autism functioning and prospering in the community...like
Temple Grandin.
These parent's have paved the way so children like mine can get an education in
a regular setting...they have made it much easier for me to raise my Autistic children.
Now it is my turn to make it easier to pave the way for those who are younger
than my children. Now it is my turn to make sure that Autism is not just considered
a quick cure because Jenny says so.
Jenny McWho?????
Now, that's better!!!
Saturday, March 21, 2009
WARRIOR MOM...
A mother who does not depend on Jenny McCarthy to define them.
I have an 18 year old daughter who needs to be able to attend college. How will anyone take
me seriously when Oprah has a Playboy Bunny preaching the cures of Autism?
A mother who fights tooth and nail at an IEP meeting so their child gets the respect and education they deserve. A mother who does not negate or ridicule another mother because they do not think the way they do.
A mother who does not feel the need to call another mother's employer because they disagree on the way to treat their autistic child...yes, people....this happens.
A mother who does not make assumptions of another mother because they do not do biomedical treatments.
I was on the phone tonight with a mother of a 23 year old man with autism. We spoke about how we were blessed not to have the Autism drama 18 plus years ago when we had to start parenting our adults with autism. We spoke about the new parent's coming into the world of Autism and how much they have to deal with the drama of Age Of Autism ,Generation Rescue and the other propaganda sites that will draw you in.
A Warrior Mom is a mom who loves their child unconditionally. Who wants them to have all of the advantages of other children. Who beams when they walk in a room.
I am a proud, card-carrying Warrior Mom...but not by the definition of Oprah and Jenny. But, by the definitions of all of the Warrior Moms that came before me. The ones who are raising amazing adults with Autism. The ones who are not looking for a "cure" or "recovery" but the ones looking to find respect and dignity for their adults with Autism...
God Bless You Warrior Moms...you lead the way...I am very close behind.
Thursday, March 12, 2009
JUST ONE...TRUSERA...
I was sent there to be filmed for a video shoot for the health blog site TRUSERA.
Trusera is an amazing site everyone.
My video was released today...here is the link...
http://www.trusera.com/health/stories/mom26children/o-donnell-after-extreme-makeover-autism-and-5-kids
I hope you like it. I am very proud to be on the Trusera blog site.
The message of JUST ONE is that it takes Just One story to have
people relate to it. The philosophy of Trusera.com is very positive.
I hope you find it the same.
Monday, March 02, 2009
SO BOARD...OOPS !!!
Autism forums, boards and "news" sites have become quite a joke
lately among the parent's of children and adults with Autism who are
truly looking for help.
I have been reading these sites for over 5 years now, and they are
still fighting about the same thing they fought about 5 years ago.
Luckily for the reader, some of the more prevalent writers have become better
spellers (my biggest pet peeve when someone is trying to be smarter than another
person).
I have read the same garbage written by the same people for years. They
have nothing new to say. These posters like to cut and paste from other forums
and act like they actually have a clue.
They call names, malign people, and actually...believe me this really happens...
start letter writing and petition signing campaigns.
PEOPLE....you are just pissing off the people you are intending to get to change their
minds.
On one board, there is a particular person who truly thinks they are smart. These
types are the scary ones. They read something somewhere...usually a site that promotes
propaganda and actually believe the crap that is written.
They take every twist and turn the propagandist makes and pushes it so far down in
their brain, it actually looks like the truth to them.
How sad they forget to think for themselves.
These places are like watching a soap opera you haven't seen in years...btw, I do
not watch soap operas (so don't go there with me). You happen to stop on the channel
and there are the same characters with the same problems..just more grey hair and they
have a couple of adult kids by now..having the same problems.
Do ya get where I am going here?
In 5 years, we will be reading the same thing on these boards.
Parents of Autistic children who practice the biomedical approach to Autism
will still be singing the praises of Jenny McCarthy and Dr. Andrew Wakefield.
Jenny and Andrew will be nicely retired after earning a butt-load of money
from these parent's.
The parent's who gave money to these retirees will be working to pay off the
large amount of debt they incurred while paying these "Autism prophets".
The good thing is though, Jenny's face will not have changed one bit...due to
being able to keep on affording the Botox she so greatly loves.
Oh, and Winnie...thanks for the chuckle today on the AW site. I have been
home all day with a sick child and needed a giggle.
"Verifying Facts"....tee hee !!!!
I hope if she is writing a book, she gets someone to spell check for her. ;)
THERE IS A FINE LINE....
between being a parent with Autistic children who doesn't use biomedical interventions and being a parent of children with Autism who do use biomedical interventions.
We are among the parent's who do not use biomedical interventions. We have seen great improvements in our children without the need for the biomedical interventions. Our children have continued to learn and gain education in regular education schools and classes.
Our children are thriving medically and very rarely get ill. They are on a gluten-filled and casein-filled diet. They are tall and meeting each milestone.
At one time, each of our Autistic children have had or is continuing to have speech, occupational, physical, recreational, play and massage therapies. These have been instrumental in our children's progress.
This morning, I went on an Autism message forum to answer a question a mother had about her daughter and having periods. She was asking for a person with Autism to answer her, but I thought that being a mother of a daughter with severe autism and having dealt with this issue, I would respond to the question.
I responded by telling what methods we used when Caitlin was having horrible issues with her period.
The response given back was written by one of the moderators telling this woman to ask a mother who does biomedical interventions. They would understand better without using traditional medical methods.
Here in lies my issues.....
Does it really matter what side of the biomedical spectrum we are on? Are we not trying to help each other cope when it comes to raising our Autistic children? Isn't that what a support group does?
Not for nothing, but my husband and I have had amazing results raising 6 children...5 of them on varying degrees of the spectrum. We have been in the "World of Autism" for 18 years. We have been there and done that. We have seen the worst Autism has to offer and the best. We have cleaned up more poop smears than any family we know. We have cleaned up more broken glass, spilled liquids, toothpaste and liquid soap spills than most people we know. We have been through the non-verbal child to the early talker. We have struggled with school systems and therapists. We have fought doctors and scientists.
My husband and I are still learning about our children. We have a pretty good grasp on them and their abilities, but always want them to achieve more. We love to learn from others who have been down this road before us. We seek out the parent's of adults with Autism, so we can learn from them....whether it is their successes or their failures.
I hope this fork in the so-called road of Autism (yes, I am full of metaphors today..sorry) narrows pretty soon. It is really getting in the way of the way people and professionals look at autism.
I mean, who can take parent's of children with Autism seriously if we cannot get along amongst each other?